Every now and then I update the progress of families profiled in A Different Dream for My Child, to give you an idea of what life is like for them on an ongoing basis. A week or so ago Scott, the father of seven-year-old Evan sent this link to a recent article about his son. Noonan’s Syndrome Evan has Noonan’s syndrome, a heart condition which typically includes a thickening of the heart...

The past two posts suggested ten ways people can help when your child is hospitalized. Today’s ideas are designed to bring some fun into the mix. The longer a hospital stay is, the more necessary fun and laughter become, at least if you plan to keep your sanity. So the next time people ask what they can do, let them play with these ideas. Food Cafeteria food gets old after awhile. Ask people...