Feb 28, 2013
My day came to a halt this past Monday morning when the radio host announced the death of Dr. C. Everett Koop at the age of 96. I nodded as the accomplishments of his life in politics were listed: Surgeon General under Ronald Reagan, evangelical Christian and early champion of the pro-life movement, promoter of AIDS education and prevention, crusader...
Feb 7, 2013
Special needs awareness has increased in the past few years. Even so, the vast majority of people without children or family members with special needs remain unaware of the vast array of special needs that affect lives in this country and around the world.
Special Needs Awareness Calendar
To foster greater awareness–and maybe to equip many of us...
Jan 31, 2013
EA/TEF Awareness Month 2013 ends today. Thirty years ago, our baby boy, born with EA/TEF was about eight months old, slowly gaining ground in his fight to stay alive. In yesterday’s post Christine Lester highlighted ten characteristics of parents caring for young kids with EA/TEF, and they accurately described life with our son way back when....
Jan 30, 2013
EA/TEF Awareness Month 2013 is almost over, but it can’t pass without a word from Christine Lester, a Different Dream blogger who’s son Billy was born with EA/TEF. Christine’s a little preoccupied with some exciting family developments these days, so she suggested using a lighthearted piece she wrote a couple years ago. The...
Jan 24, 2013
Alphabet soup isn’t hard to swallow. Not for most people anyway. But when a pediatrician says your newborn baby has esophageal atresia and tracheoesophageal fistula (EA/TEF), the diagnosis is a hard one for parents to digest. And for the baby, this particular alphabet soup can be deadly.
Alphabet Soup: EA/TEF Style
My husband and I learned of...