Trisomy 18 Foundation
Thanks to Victoria Miller, who sent me a message through Facebook, I have new friend. Victoria is the founder of the Trisomy 18 Foundation, which provides support for families of children who are diagnosed with Trisomy 18. She emailed to say she discovered my book, A Different Dream for My Child: Meditations for Parents of Critically or Chronically Ill Children, on Facebook and has been giving it to families in the T-18 community. Gotta love a woman like that.
Read Victoria Miller’s Story
To really get to know Victoria, you have to read the story of her son’s short life which is posted on the Trisomy 18 Foundation website. Her moving testimony about the impact Isaac had on her and her husband reveals a great deal about her kindness and compassion.
Friends Don’t Always Agree
You will learn a great deal about Trisomy 18 at the foundation’s website. Please keep in mind that the foundation was created for all parents of children with Trisomy 18, not just those in a particular faith community. Therefore, you may not agree with everything you read there. I don’t either.
Perhaps Victoria doesn’t agree with everything she reads here. But we can still be friends. With her, I can still reach out to the parents of children with special needs. I can offer support and resources. In doing so, maybe some families will see Christ’s compassion and seek after him.
That’s the kind of friend I want to be.
Jolene
Love this! I know a little boy who has T18. He just had his 9th birthday and is doing amazing!
Hi Beth,
I checked out your blog and loved it. Please do send the Trisomy 18 information on to your friend. The founder of the organization, Victoria Miller, is a most encouraging person. Thanks for your help!
Jolene
Our daughter Hayley (full T-18) will be 20 in September. She is doing very well and is an amazing person.
My little Andrew Paul had T 18…He lived 4 1/2 months and was a blessing to our family!!!
Hi John,
Thank you for the heartening news about your daughter, Hayley. If you know of other good resources for families of kids with T-18, please tell us about them!
Jolene
Dear Beverly,
Thank you for telling us about Andrew Paul. May your memories of his life be sweet and his place in your heart be full of joy.
Jolene