Evan Is on the Run!
Every now and then I update the progress of families profiled in A Different Dream for My Child, to give you an idea of what life is like for them on an ongoing basis. A week or so ago Scott, the father of seven-year-old Evan sent this link to a recent article about his son.
Noonan’s Syndrome
Evan has Noonan’s syndrome, a heart condition which typically includes a thickening of the heart muscles. The terminal condition, also called “hypertrophic cardiomyopathy,” keeps Evan on a ventilator almost full-time. Evan has already lived longer than anyone expected, and his family counts every day with him as a gift.
University of Michigan’s Big House/Big Heart Run
You can go to the article at AnnArbor.com to learn more about how Evan’s dad and his cardiologist helped the little boy be part of the Big House/Big Heart run in the huge University of Michigan stadium . Be sure to scroll down to the slide show for pictures of Evan enjoying both the run and walking around on the football field. It’ll do your heart good!
